Day 6 - Day 10 - 6th November - 10th November

Every day we are seeing differences in Kezzie... her tongue is moving a little better...she swallows and you can see her little chin working to help with the swallowing action...she is still on Cortizone to stop the swelling in the brain and the brain stem...she is still on Epilim to stop the seizures...and she is still on Clexane twice a day.. Every day she receives physio for her chest as she is chesty which comes from lying too much and we do not want her to get pneumonia or Bronchitus..she is off the athsma pump that she received in ICU but she still gets Nebulised 3 times a day which really upsets her and puts her in a crying fit.. her dad and I tried to sing puff the magic dragon (we always used to sing it for Miguel as he has asthma and every winter he got very sick and had to be nebulised) but we could not remember the words..and in true Brad fashion he made up the words.. I could just smile...she is more peaceful now that she is not in ICU and her walls are covered with little letters from her class and cards from Well Wishers and Aunty T has brought little butterflies and dragon flies which have been stuck to the walls and drip stands and even the ceiling fan...she has so many soft toys and other presents and has had so many visitors and I know that so many people are still praying...the feeding tube is still in as well as the drip and they have had to move the drip as there has been tissue damage so we have moved the drip from the one hand to the other..her feeding tube has come out in this time period and it has been hectic and traumatic for Kezzie to have this put back in... her tummy has also not been working very well and Doctor Li has perscribed what he calls a bumb bomb but the first time they did this it was so hectic and her little body could not take it and she stopped breathing and they had to put her back on oxygen (I forgot to mention they have taken the oxygen out by now),,, My heart goes out to my Nunu Kupunu..all those prodding and poking (still blood tests every day to check the XA levels)... how does she keep going? Waking up to realise this is not a dream and that she still is in the hospital? That this is a reality? How does one cope at 7 with this difficult journey if her mother of 37 cannot cope with this? Baby mommy loves you and I am so sorry you are suffering like this and if I could take it I would....but remember this that every step of the way your mamma will walk this with you and that is my promise.. I pinky swear... I will not let you take one step on your own.... Miguel is in the middle of exams and I have neglected him as well... I am so sorry my boy....Mommy loves you too... even though you probably dont feel it right now...your sister can do nothing and I need to help her so that we can get our Nunu back for Christmas... we are going to have the best Christmas ever I promise...