Wednesday, December 2, 2009
Day 20 - 20th day - Homecoming....
Good morning my bunny today is the day you come home.... I am filled with fear as I will be all alone and caring for you with no staff to help... I hope all is going to be ok...I have been taught how to give you Clexane injections twice a day to thin your blood and you need 7/5mls of Epilim 3x a day for seizures...God please help me that nothing goes wrong while she is at home with me... Baby girl your feeding tube comes out and you are going to leave the hospital room and finally go home... I am so proud of you look how far you have come...it can only get better from here...I am so glad to have you finally come home...who would have known 20 days a go what was going to happen... thank goodness for miracles...Feeding tube is out and you are so impatient to go home...patience was never something you had...cutie pie...basically trying to climb out of bed...Daddy is coming to fetch us and we are taking you to my home...we are home and trying to get used to having to adapt to new challenges....oumie and Mig's have arrived and oumie has bags of goodies...Miggie is seeing you in our home environment for the first time and I can see it is difficult...All 3 of you are sitting on the couch, Mig, you and dad... and all together chatting it is so beautiful to see...I am running around and trying to settle everything in my Virgo mind...not so easy... I can see you are battling Nunu to come to terms with new surroundings that are not the hospital surroundings... be brave it will all work out...it's night time and time for medicines...Migs is sleeping with us tonight but we have had one hiccup already with food...Mig's wanted hamburgers that oumie bought from Woolworths and Kezzie cried because she also wanted to eat that..he was so upset he would not eat and cried...this is difficult on him too...this started a cascade of tears and venting...Miggie wanted to know why everything always happens to us and I honestly could not answer this question...he was sobbing and Kezzie was crying because of her situation and she was saying she will never get better when asking questions ...they are both crying and hurting inside as this has affected both of their lives so drastically...this is life altering...so I let them cry ...tried to comfort them and then we prayed together... I have also decided that I will not give Miggie more responsibility than he had when Kezzie was ok as he is going through enough already without piling more on him because I have twenty times more to do...it is not fair...he can participate in her therapy and help me now and then but I am not going to pile it on him that it has to be done... he is only 11 and still just a child and needs his space to be a boy...I love you both and I am blessed to have both of you under my roof tonight...thank you Jesus for your hand of protection over my little family...keep your hand of protection over us as we go through this journey...my headstrong boy and girl and lets not forget their mamma....Thank you for your blessings so far...
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And please bless this strong mother who is trying to take on the world on behalf of her children. Wrap a blanket of love and compassion around them and help them stand when the weight of responsibility make their legs buckle. Amen & Amen!!
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